Privacy and the MURDOCK Study

How we keep your information safe

The MURDOCK Study Community Registry and Biorepository has been approved by the Committee on the Protection of the Rights of Human Subjects (Medical Institutional Review Board) at both Duke University and Carolinas Healthcare System (CHS).  Institutional Review Boards (IRB) work to protect the rights and well-being of humans participating in biomedical or behavioral research.We will not provide information that identifies you (name, social security number, address, telephone number, or any other direct personal identifier in study records) without your permission, except if required by law.

MURDOCK Study investigators have implemented several layers of safeguards to ensure the protection of participant information.

After enrollment, your name and any other identifiers will be removed and will be replaced with a barcode.  Your samples will be stored in locked freezers in locked buildings.  We use secure computers to store health information and research data. Researchers who study your samples and health information will not know who you are because your samples and health information will be de-identified.



If you have any questions about your rights as a research participant, you may call MURDOCK Study staff at (704) 250-5861.

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