Privacy and the MURDOCK Study

How we keep your information safe

The MURDOCK Study Community Registry and Biorepository has been approved by the Committee on the Protection of the Rights of Human Subjects (Medical Institutional Review Board) at both Duke University and Carolinas Healthcare System (CHS).  Institutional Review Boards (IRB) work to protect the rights and well-being of humans participating in biomedical or behavioral research.We will not provide information that identifies you (name, social security number, address, telephone number, or any other direct personal identifier in study records) without your permission, except if required by law.

privacy
MURDOCK Study investigators have implemented several layers of safeguards to ensure the protection of participant information.

After enrollment, your name and any other identifiers will be removed and will be replaced with a barcode.  Your samples will be stored in locked freezers in locked buildings.  We use secure computers to store health information and research data. Researchers who study your samples and health information will not know who you are because your samples and health information will be de-identified.

 

 

If you have any questions about your rights as a research participant, you may call MURDOCK Study staff at (704) 250-5861.

Georeferencing

In partnership with the geospatial mapping experts at Duke’s Children’s Environmental Health Initiative (CEHI), the MURDOCK Study is georeferencing – or spatially locating – enrollment into its registry/biobanking project.  By characterizing where individuals live when they join the study, the MURDOCK Study team can be better informed about where they should target their recruitment efforts and potentially improve study design.  Adding this new dimension to the data that is collected will provide MURDOCK Study researchers with an alternative and unique method for data presentation and analysis.

Community Advisory Board

The MURDOCK Study Community Advisory Board was created in January 2010. Made up of local community leaders, the board provides Duke University’s MURDOCK Study leadership with a community voice. The group convenes biannually.

Members of the Community Advisory Board include:

  • Keri Allman, Executive Director, R3, Rowan-Cabarrus Community College
  • Kenneth R. Argo, Certified Public Accountant/Trust Administrator
  • Lamar Barrier, Concord City Councilman, District 5
  • JoAnne Byerly, EdD, Superintendent (retired), Kannapolis City Schools
  • Brett Crosby, Executive Director, Kannapolis YMCA
  • Gayle Deal, Retired RN, CMC-NorthEast
  • Marie Dockery, Director, Community Free Clinic
  • Rita Dominguez, CHES, Latino Coordinator, Faith Community Health Ministry, Carolinas HealthCare System
  • Edward Hosack, Executive Director, Cooperative Christian Ministry
  • Reverend Andy Langford, Senior Pastor, Central United Methodist Church
  • Dianne Snyder, DHA, RN, Chancellor, Cabarrus College of Health Sciences
  • Mark Spitzer, MBA, Vice President of North Carolina Operations for Castle & Cooke
  • Edward Tyson, Retired Superintendent, Kannapolis Schools
  • Phyllis Wingate, Division President, CMC-NorthEast

Healthcare Advisory Board

The MURDOCK Study Healthcare Advisory Board was created in January 2009 and is made up of local healthcare providers in the region. This group brings their on-the-ground clinical perspective and is dedicated to engaging their patients to join the study. The group convenes biannually.

Members of the Healthcare Advisory Board include:

  • Paul Campbell, MD, Sanger Heart & Vascular Institute of the Carolinas
  • Keith Griffin, MD, Lakeside Primary Care
  • Robert Kinney, MD, Director of Research, CMC-NorthEast
  • Suzanne Knight, RN, MPH, Clinical Director-Clinical Services, Cabarrus Health Alliance
  • Andrew Matthews, DC, Kannapolis Spine & Wellness
  • Robert B. Mitchell, MD, NorthEast Neurology
  • Wayne Phillip, MD, Community Free Clinic
  • Harold Thomas III, MD, Kannapolis Internal Medicine
  • Ricardo Vargas, MD, Lakeside Primary Care-Locust
  • Tony Walden, MD, NorthEast Endocrinology

DHMRI

dhm

The MURDOCK Study partners with the David H. Murdock Research Institute to access world-class technologies and platforms. Click on the logo above to see what other projects the DHMRI is supporting.

WordPress is a content management system and should not be used to upload any PHI as it is not an environment for which we exercise oversight, meaning you the author are responsible for the content you post. Please use this system accordingly.