Frequently Asked Questions about joining the MURDOCK Study
- What is the MURDOCK Study?
The MURDOCK Study, which stands for Measurement to Understand the Reclassification of Disease Of Cabarrus/Kannapolis, is a long-term health study designed and led by Duke University and based locally in Cabarrus County, Kannapolis and the surrounding region in North Carolina. By collecting health information and biological samples—3 tablespoons of blood and 3 tablespoons of urine—from volunteers, Duke researchers and their partners hope to improve the way diseases are diagnosed, treated, and potentially prevented and cured.
- How many people are enrolled?
We have enrolled over 12,000 local adults into the MURDOCK Study. Some have specific diseases and others are healthy; both are equally important was we use information from our participants to determine patterns in disease development and progression.
- What are some of the diseases being studied?
Cardiovascular disease, liver disease, osteoarthritis, obesity, severe acne, multiple sclerosis, memory disorders, and others to come.
- What have we asked of our participants?
- Those who agreed to enroll were asked to come to one of our many enrollment sites for a 45 minute visit.
- Enrollees reviewed and signed our consent form with a you will trained Clinical Research Coordinators.
- Next, participants were asked to complete a questionnaire to include basic information such as name, age, racial and ethnic background, and health history, as well as a medication list.
- We collected blood pressure and pulse, waist circumference, and a one-time sample of blood and urine, about 3 tablespoons of each.
- Participants agreed to contact up to four times per year for additional study opportunities associated with the MURDOCK Study.
- I am currently a participant, or have given my biological samples and health information in the past. Where are they, now?
We store your samples and information in the MURDOCK Study Community Registry and Biorepository, a secure, state-of-the-art facility. There is no limit on the length of time we will keep your blood, urine and information unless you decide to stop participating. We will contact you once a year to update your health form, and we may contact you up to four times a year to ask if you would like to participate in additional studies. *You should not expect to get individual results from your blood and urine samples.
- As a participant, how is my privacy protected?
The MURDOCK Study Community Registry and Biorepository has been approved by the Committee on the Protection of the Rights of Human Subjects (Medical Institutional Review Board) at both Duke University and Carolinas Healthcare System. We will not give information that identifies you (name, social security number, address, telephone number, or any other direct personal identifier in study records) to anyone without your permission, except if required by law. Your name will be removed and any other identifiers will be replaced with a barcode. Your samples will be stored in locked freezers in locked buildings. We use secure computers to store health information and research data. Researchers who study your samples and health information will not know who you are because your samples and health information will be de-identified. If you have any questions about your rights as a research participant, you may call Duke University staff at (704) 250-5861.
- How will I benefit from my participation in this study?
You have a chance to help others and improve the health and quality of life in our community. You will also receive newsletters featuring updates on the latest research affecting the community, and you will have access to a website that will keep you updated with the latest information on the study. Participants are compensated.
- Can I stop participating?
You can stop participating in the MURDOCK Study at any time.